Why do we need a Patient Registry?
The Registry was created to link individuals with Cavernous Angioma to members of the research community by collecting information from individuals with Cavernous Angioma; otherwise known as Cerebral Cavernous Malformation (CCM) or Cavernoma.
The goal of the Registry is to facilitate discovery of a non-invasive treatment for Cavernous Angioma. Members of the Registry have the opportunity to assist in the development process as members are provided with the most up-to-date information about research studies and clinical trials seeking participants.
If you are interested in participating in research, Join Now!
By creating a Registry member profile, you are helping to define the diversity of the Cavernous Angioma illness among our worldwide members. Information provided by registered members is used to identify research studies in which individuals are eligible to participate. We will contact you about research studies; your personal information will not be shared without your permission.
Learn more about Cavernous Angioma; genetics of the disorder; and support for you and your family members.